My identical twin sister and I were born 3 months premature weighing 2lbs 6 ounces. Lack of oxygen caused a grade 4 bilateral brain bleed. I had cardiac arrests and multiple lung collapses. I have Spastic Quadriplegia Cerebral Palsy and Hydrocephalus. I was on life support in the NICU for my first two weeks of life. Everyone thought we'd die. . My sister did. I have a shunt inside my brain for my hydrocephalus . I survived when no one thought I would. This is my story
Sunday, 23 December 2012
Birthday Blog entry
Yesterday was my 31st birthday. I can't believe where the years have gone but I'm really proud of what I've done in life up till now. It's about 14°C, so it is actually not too cold and a nice temperature for this time of year I had a lot of nice phone calls and text from friends and family, plus cards and some gifts. I'm really pleased that I've got 3E loves wheelchair heart stuff. I'm now the proud owner of a Hoodie, some badges, some wheelchair heart decals , and a wheelchair heart temporary tattoo! We ate Chinese food and then had my birthday cake which was an ice cream cake with vanilla ice cream, caramel ice cream, a biscuit base and a chocolate topping – it was delicious!
We also went out to see the Christmas lights on streets near where we live. I'll put some more photos on Facebook soon.
A couple of days ago, we went to see Madrid horse week which
was an exhibition with showjumping and events such as gymnastics on the horses and processions by members of the police and other organisations. I loved it!
Today I'm just relaxing doing some reading and thinking about working a little bit more on my book. I'm really excited about writing it. I'm also really glad that I have Dragon dictation software as this is a real help as it always has been to me in the past when I was studying at school and university, as throughout my life my fingers and hands spasm and cramp to the point I cannot hold a pen or press a key (even on a virtual keyboard) and am unable to move
any part of my hand as the spasms are painful when I write or type for any length of time, no matter how short. An OT told me this is due to the over-activity of the muscles in my arms and hands and spasticity as its hard for me to achieve adequate posture to hold a pen or press a key.
For me, my birthday always has a slightly melancholy undertone, as I remember Natalie, my identical
twin, born just minutes before me, and wish she were here. Happy birthday for yesterday, I love and
miss you. That said, I'm glad I have my sister Nicky to make up for Natalie not being here.
I'm really looking forward to all my birthdays still to come, and I plan to enjoy every one of them equally as much!
I've decided that I want the book published in various formats including paperback e-book a large print format book and audio book in order to make it as accessible as possible to as many people as possible. I also want to start making a couple of videos for my Facebook pages.
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