Friday, 25 October 2013

World Spina Bífida and Hydrocephalus Awareness Day 2013

Today is World Spina Bifida and Hydrocephalus Awareness Day. Here's some background information about the Day , and how the idea of an Awareness Day for these disabilities was thought up. 

In 2011, The International Foundation for Spina Bifida and Hydrocephalus ( IFSBH  ) General Assembly designated 25 October as the World Spina Bifida and Hydrocephalus Day. IFSBH and its member associations will use the Day to raise awareness about Spina Bifida and Hydrocephalus and the ways in which neural tube defects (NTDs) can be reduced through primary prevention.
As from 2012 the World Spina Bifida and Hydrocephalus Day will be celebrated on the 25th October every year. The World Spina Bifida and Hydrocephalus Day is led by the International Federation for Spina Bifida and Hydrocephalus and its member associations. It is an opportunity to raise awareness and understanding about Spina Bifida and Hydrocephalus. It is also a means to advocate and promote the rights of persons with these impairments.
To mark this day, a website has been dedicated to the world Spina Bifida and Hydrocephlaus Day: www.worldspinabifidahydrocephalusday.com
Why a World Spina Bifida and Hydrocephalus day?
Thanks to the continuous advances in medicine, healthcare services have been drastically improved for people with Spina Bifida and hydrocephalus. But despite this, many children and adults living with Spina Bifida and Hydrocephalus don't have access to the right treatment and care services and stigma and discrimination remain a reality in many countries. Besides, people are not aware about the facts regarding Spina Bifida and Hydrocephalus and ways to prevent neural tube defects.
The World Spina Bifida and Hydrocephalus Day is significant as it reminds the public and policy makers that Spina Bifida and Hydrocephalus are a reality and that is imperative to increase awareness about them and improve the lives of people living with these impairments.
 
- See more at: http://www.ifglobal.org/fr/what-we-do/world-spina-bifida-and-hydrocephalus-day#sthash.V2OZWc0I.dpuf

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